BARTH SYNDROME FOUNDATION OF CANADA

The Barth Syndrome Foundation of Canada supports individuals and families affected by Barth syndrome, a rare genetic disorder that impacts heart, muscle, immune, and blood cell function. Based in Georgetown, the foundation funds research to advance understanding and treatment of the condition while providing education and resources to patients, caregivers, and medical professionals across Canada and the GTA. The organization connects affected families with each other and with specialists, helping to reduce isolation and improve quality of life for those living with this complex metabolic disorder. Through research grants and community initiatives, the foundation works toward better diagnostic protocols and therapeutic options for people with Barth syndrome.