Canadian CdLS Awareness Foundation

The Canadian CdLS Awareness Foundation raises awareness and provides support for individuals and families affected by Cornelia de Lange Syndrome, a rare genetic condition that causes developmental delays, distinctive facial features, and physical complications. Operating across the GTA and beyond, the foundation works to increase public understanding of CdLS through educational campaigns, connects families with resources and medical information, and funds research into better treatments and outcomes. The organization also advocates for improved access to specialized care and support services for people living with this condition, helping families navigate diagnosis, treatment options, and long-term planning. By building community among affected families and engaging healthcare professionals, the foundation aims to improve quality of life for those with CdLS and ensure they receive appropriate medical attention and social support.