Canadian FOP Network

The Canadian FOP Network supports people living with Fibrodysplasia Ossificans Progressiva, a rare genetic condition where soft tissue gradually hardens into bone, severely limiting movement and mobility. The organization provides education, resources, and peer support to patients and families across the GTA and beyond who are navigating this progressive condition. The network connects individuals with medical expertise, helps coordinate care among specialists, and works to increase awareness of FOP among healthcare providers. Members access information about managing symptoms, adapting to physical changes, and accessing research developments. The Canadian FOP Network addresses the isolation that often accompanies rare diseases by building community among those affected and fostering better understanding of FOP's complex challenges.