Canadian Osteogenesis Imperfecta Society

Legal name: CANADIAN OSTEOGENESIS IMPERFECTA SOCIETY

The Canadian Osteogenesis Imperfecta Society provides support and resources for people living with osteogenesis imperfecta, a genetic disorder affecting bone formation and strength. The organization offers peer support programs, educational materials, and advocacy services to help individuals and families navigate diagnosis, treatment, and daily life with brittle bone disease. Based in Milton, the society connects people across the GTA and beyond through support groups, medical information, and access to specialists. The organization also works to increase public awareness and understanding of the condition among healthcare providers and the general public, while advocating for improved care standards and research funding.