ONTARIO PRADER-WILLI SYNDROME ASSOCIATION

The Ontario Prader-Willi Syndrome Association supports individuals and families affected by Prader-Willi Syndrome, a rare genetic disorder that impacts metabolism, growth, and behavior. Based in Ajax, the organization provides education, advocacy, and community resources to help people with PWS and their caregivers navigate medical, developmental, and social challenges. The association connects families across the Greater Toronto Area with specialists, peer support networks, and information about managing the condition's complex needs. Through awareness campaigns and outreach, the organization works to increase understanding of PWS among healthcare providers and the public, ensuring that affected individuals receive appropriate care and have opportunities for meaningful participation in their communities.